Disability Data advocacy toolkit

This toolkit is designed to highlight the journey so far regarding data on disability and to also provide persons with disabilities and their representative organizations with some basic knowledge on data collection, analysis, and use of data for evidenced based advocacy. Organisations of persons with disabilities (OPDs) have many roles to play in both influencing for data generation, using data when it is available and contributing to the development of data.

The toolkit has three sections and each section can be looked at independently. However, we would suggest you read all sections to be aware of the different aspects related to disability and data advocacy.

• We need the data: Advocating for data. This section highlights why advocating for disability inclusive data is important as the first step to data creation
• Where do I find officially collected data and how I can check it is valid? What do I need to think about? This section highlights the different points that need to be considered when using official data.
• When data doesn’t exist or is limited what can we do? This section highlights examples of how unofficial data, qualitative data and storytelling can help when data gaps exist.