01885nas a2200217 4500000000100000008004100001653002500042653001300067653001800080653003900098653001700137653002800154100001100182700001500193700001200208700001300220245010600233856004100339490000600380520128100386 2018 d10aCommunity engagement10aEthiopia10aMental Health10aNeglected tropical diseases (NTDs)10aPodoconiosis10aStigma (health related)1 aTora A1 aMengiste A1 aDavey G1 aSemrau M00aCommunity involvement in the care of persons affected by podoconiosis—A lesson for other skin NTDs. uhttp://www.mdpi.com/2414-6366/3/3/870 v33 a

Podoconiosis is a neglected tropical disease (NTD) characterized by lower-leg swelling (lymphedema), which is caused by long-term exposure to irritant red-clay soils found within tropical volcanic high-altitude environments with heavy rainfall. The condition places a substantial burden on affected people, their families and communities, including disability, economic consequences, social exclusion, and stigma; mental disorders and distress are also common. This paper focuses on community-based care of podoconiosis, and, in particular, the role that community involvement can have in the reduction of stigma against people affected by podoconiosis. We first draw on research conducted in Ethiopia for this, which has included community-based provision of care and treatment, education, and awareness-raising, and socioeconomic rehabilitation to reduce stigma. Since people affected by podoconiosis and other skin NTDs often suffer the double burden of mental-health illness, which is similarly stigmatized, we then point to examples from the mental-health field in low-resource community settings to suggest avenues for stigma reduction and increased patient engagement that may be relevant across a range of skin NTDs, though further research is needed on this.