02184nas a2200337 4500000000100000008004100001260001200042653002600054653001900080653003800099100001200137700001200149700001300161700001300174700001800187700001600205700001700221700001400238700001600252700001400268700001100282700001800293700001400311700001700325700001200342245011900354300001200473490000800485520133900493022001401832 2024 d c08/202410aChagas Cardiomyopathy10aChagas disease10apatient-reported outcome measures1 aSilva W1 aSilva K1 aXavier D1 aĆvila M1 ade Oliveira L1 aColicchio V1 ade Almeida I1 aBastone A1 aAlcantara M1 aLacerda A1 aLima V1 ade Oliveira L1 aMediano M1 aFigueiredo P1 aCosta H00aThe usefulness of patient-reported outcome measures in decision making in Chagas cardiomyopathy: a scoping review. a491-4970 v1183 a
Chagas cardiomyopathy (ChC) presents many biopsychosocial complexities, highlighting the need to have patient self-report questions. This study demonstrates the scope of the use of patient-reported outcome measures (PROMs) in patients with ChC and highlights the main research gaps. This is a scoping review and the search strategy was performed in the Online Medical Literature Analysis and Retrieval System (MEDLINE), Excerpta Medica database (EMBASE), Accumulated Index of Nursing and Allied Health Literature (CINAHL), Cochrane Central, Latin American Literature and Caribbean in Health Sciences (LILACS) and Diagnostic Test Accuracy (DITA). The search identified 4484 studies and 20 studies met the inclusion criteria. The Short-Form of 36 items (SF-36) had potential prognostic value and the ability to identify systolic dysfunction. The Human Activity Profile was able to screen for functional impairment, and the New York Heart Association showed potential prognostic value. The SF-36 and Minnesota Living with Heart Failure Questionnaire were responsive to interventions. The pharmaceutical care affected adherence to treatment as assessed by the Morisky score and also for SF-36. Despite the increased use of PROMs, there are still a large number of gaps in the literature, and further studies using PROMs are needed.
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